The NF Summit is the largest gathering for people living with NF, caregivers, volunteers, patient advocates, researchers, clinicians, friends, and supporters. The atmosphere is energetic, interactive, and welcoming, with flexible programming and direct access to NF experts. No matter your age, diagnosis, or where you are on your NF journey, you will find sessions and connections that are meaningful and relevant to you.

Yes—this is a family-friendly event, and children are welcome to attend. Please note that childcare is not provided, and some sessions may be challenging for younger children to sit through. To ensure a positive experience for everyone, we encourage adults bringing children to coordinate and take turns attending sessions as needed.

The Teen Track is special programming just for teens living with NF (and their teenage siblings). This is not childcare—it’s a place to connect, have fun, and learn alongside peers who understand. Teens can participate in interactive activities and discussions in a welcoming, empowering environment. It’s a great place to relax, learn, make friends, and build lasting connections beyond the Summit.

The dress code for the NF Summit is casual, and CTF attire is always welcome. While outdoor temperatures may be warm, hotel conference rooms can be quite cool, so we recommend bringing light layers. Most importantly—wear what makes you comfortable.

Sessions will focus on topics relevant to all types of neurofibromatosis and schwannomatosis, including research updates, clinical care, daily living, advocacy, and quality of life. A full agenda is currently in development and will be posted here in the coming weeks.

The 2026 NF Summit will be an in-person-only event. Select presentations will be posted online following the event.

To complete your payment, please return to the registration form and enter the email address you used to register. You will be prompted to finish your payment. If you need assistance, please contact us at nfsummit@ctf.org.

We understand that plans can change. However, registration fees are non-refundable. If this creates a hardship, please contact us at nfsummit@ctf.org, and our team will do its best to assist you.

Yes. The Children’s Tumor Foundation offers financial assistance through the NF Summit Scholarship Program to help offset the cost of travel, hotel, and registration for individuals and families who need support. Scholarship availability and applications are limited. To learn more, visit the NF Summit Scholarship Program page.

Hotel and travel arrangements are the responsibility of each attendee. A discounted hotel room block may be available for NF Summit attendees and will be listed on the Hotel & Travel page. We encourage you to book early, as discounted rooms and nearby hotels may fill quickly.

Yes! The NF Summit offers a mobile event app where you can view the full agenda, create your personal schedule, connect with other attendees, and receive real-time updates. The app will be available on both Apple App Store and Google Play before the event.